Across rare diseases, awareness days and months have become so effective at helping drive awareness, education, and support. Through the coordination of many voices coming together at the same time, stories get amplified, and become the platform for important health topics. That’s exactly what we aimed to achieve with 29 Read more…
On Rare Disease Day, and every day, Guidemark Health strives to help patients with conditions such as pulmonary arterial hypertension (PAH) reach their full potential. From a decades-long partnership with key HCPs to patient education initiatives around the world, we stand in solidarity with the millions of patients, caregivers, healthcare providers, and scientists working tirelessly to make a difference for those with rare diseases.
The individual and family receiving a diagnosis and being confronted with the term “rare” can also hear “easily forgotten” and “not a priority” in terms of research and advocacy.